Overview

SOLID "The Systematic Observatory Liver-Diseases Registries" project is a multinational, multi-center, observational, open-label group of medical registries designed to electronically capture data, manage, monitor, and  report in liver disease patients' outcomes treated in SOLID participated Saudi Arabian and Canadian medical centers from across all designated regions.

The main goal of SOLID registries is to collect sufficient data and accumulate experience related to the most common liver diseases seen within the two countries, to evaluate current clinical practices, identify opportunities to improve the quality-of-care for patients with liver disease, facilitate clinical research by providing data, help develop diagnostic and therapeutic clinical guidelines and provide real-life information for healthcare planners for a precise estimation of diseases' burdens and future needs and costs.

SOLID registries are designed to be a non-experimental studies, where all enrolled patients are expected to be treated according to current routine hospital practices and standards of care.

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Our Objectives

In order to improve our understanding of the epidemiology and impact of liver disease, and to enhance our ability to institute effective means of diagnosis, therapy, and prevention of liver disease at the population level, the establishment of a well-designed research database with adequate funding is crucial. Additionally, an appropriate organizational structure, staffed with qualified personnel, is a key ingredient to accomplish such objectives.

Although some of these requirements are already in place, a continued ...... Read more    

Ethical Considerations

An ethics approval letter will be obtained from the ethics committee of each individual participated hospital.  Despite the fact that patients' names & identities are unidentified during SOLID research  and all submitted data will remain encrypted from data entry to data analysis and publications,  A consent form is to be collected from each individual patient enrolled in the registry.

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